I've always been afraid of final suffering and mortality I used to wonder how I would handle a death sentence from a doctor life laid out on a definitive timeline no where left to hide I never expected that sentence to come from scientists instead given the heavy knowledge of our impending expiration date I never thought dying alone would feel like a blessing It's better than awaiting the end of everything at once among crowds of people with their eyes covered "I told you so" won't feel very satisfying I've been reading books for the terminally ill in an attempt to learn how to cope with utter annihilation on my own But none of them touch the terror of the truth I harbor none of them tell you how to prepare for an apocalypse or to get your loved ones to take you seriously Fear follows me closely as I float through these shapes and forms I find no comfort in the idea of life eternal or peace in the notion of not existing both options terrify me equally at least there's a dark humor in that But more than anything I fear the reality that my final days, months, even years will be shrouded in unfathomable suffering I fear the rising terror and despair stealing the color from my family's faces but I guess I've always been afraid
Due to my morbid obsession with death and dying this past week, I started looking for some books to read in order to better cope with these grim ruminations. After a little searching, I came across a book that seems perfect for me. It’s called Being with Dying: Cultivating Compassion and Fearlessness in the Face of Death by Joan Halifax. I haven’t gotten past the first few chapters yet, but it has already been a great comfort to me.
This book approaches the subject of death from a Buddhist perspective. It highlights the different ways that western and eastern cultures deal with death. It calls attention to the way the fear of death dominates western culture. We do our best to hide it away out of sight. We live most of our lives without ever thinking about the fact that we are all going to die some day. Avoidance seems to be a primary part our lives, especially in America.
The best part about this book is that it is written as a resource for everyone, in any stage of life. It can benefit teenagers, the elderly, caregivers, medical professionals, healthy people, and people that are terminally ill. This book reminds us that death is a natural part of life. It is something that has the potential to bring us all together. It is ultimately the great equalizer. It is a phase of life, a culmination of everything we have experienced here, a right of passage, a necessary darkness we will all pass through one day.
One of the ways I believe this book will help me is by preparing me to be there for my loved ones when they die. I still feel tremendously guilty about how little I was around my grandmother as she was slowly dying from cancer a few years ago. For the most part, I wouldn’t allow myself to think about it. I saw her when we went to my parent’s house on holidays. It was painful just to look at her, to be in that room with her. Even though it was actually the room I grew up in, my childhood bedroom. What a sad, beautiful mixture of things that have gone on within the walls of that room.
When I sat by her bedside those last few times I saw her, I felt paralyzed, petrified. I didn’t know what to do. I didn’t know what to say. I wanted to hold her. I wanted to cry. I wanted to ask her so many questions. But instead I sat silently at her side, waiting for any opportunity to leave. I still wonder how she must have felt in her final days. Was she afraid? Did she resent us for not being there for her? Did she find peace? Did she have regrets? Were there things she wanted to tell us, but didn’t? Did we leave her feeling alone? Unloved? What is normal, what is acceptable to say or do around a death bed? Is anything? Does it even matter?
I think our society’s fear and avoidance of death leaves a lot of people to regret their incompetence when dealing with the passing of a loved one. When you avoid something all your life, how can you possibly be expected to handle it when it is in front of you? When it can no longer be avoided? When my other grandmother passes, when my parents pass, I want to be ready. I want to be everything I wished I could have been for my dad’s mom. I want to be brave enough and comfortable enough to discuss these difficult topics with them. I want to be prepared to give them everything that they need, even if they are unable to ask for it when the time comes.
Being with Dying provides exercises to help us work through our aversion and fear of death. The first meditation it suggests is to contemplate both the best and the worst case scenarios for your own death, in as much detail as possible. I want to have my grandmother and my mom do these exercises with me at some point. I want to know everything that I can do to make their deaths peaceful and comfortable and meaningful. However, even the thought of writing such a thing down seems terrifying to me. At the same time, that terror is quite fascinating. To confront this reality, the certainty of death, why is it so very painful? Why does my mind want to avoid even the thought of it at any cost? Do people in other cultures feel the same way? Or are they able to embrace this inevitability with grace and humble surrender?
I think my greatest fear surrounding death, is simply not knowing. It is the ultimate loss of control, a nosedive into a vast unknown. Perhaps it is less daunting if you believe in an afterlife of some kind. But it seems impossible that anyone could have total conviction as they are facing down their own end. There must always be some doubt, some uncertainty. It is not only not knowing what happens after we die, but not knowing when or how we will die that is frightening. I suppose a lot of people are also deeply afraid of death being painful. As someone who hasn’t experienced hardly any physical pain yet in my life, I find this hard to imagine well enough to be afraid of. Besides it always seems like pain can be escaped, even if that escape is death itself. However, that not knowing, that final surrender, will always be there.
I am looking forward to reading more of this book. I am hopeful that it will give me the tools I need to prepare myself for this stage of life, this end of life. Not only for myself but for those around me as well. Even if you think I’m nuts for believing the science that says soon the oceans will be dead along with all of us, I would still recommend this book. Regardless of when you imagine death will touch your life, the fact remains that it will, no matter who you are. It’s much easier to avert our eyes as long as possible, but if you are ready to face that fear head on and take the steps you need to in order to be prepared, Living with Dying seems like a great place to start.
Please make the wonderful effort to show up for your life, every moment, this moment – because it is perfect, just as it is.Being with Dying